Childrens Tumor

  • Neurofibromatosis: A Very Ugly Disease Which Affects Very Beautiful People

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          Back in 1997, my family and I sat inside the neurologists’ office at the Children’s Hospital of Philadelphia (CHOP) and waited patiently for the results of my son’s global medical evaluation. There were tests to order more tests; cognitive, physical, neurological, biological, and psycho-educational assessments were performed. We were hopeful for answers.…


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