learning to cope
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Why NF1 Is Not About the Tumors
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Over the past few days, I had the opportunity to read various Facebook and email comments about children being newly diagnosed with the dreaded Neurofibromatosis disease. I have also spoken with mothers who worry about the effects of this disease. This is certainly understandable. Tumors–one ugly word; and I am not kidding–a very ugly disease. The…
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Everything You Wanted to Know About Getting Your Kid Help
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People who “walk the walk and talk the talk” understand the how difficult, and also, how wonderful it is to raise a child who has special needs. Over the years, these parents will interact with people, who are not raising an exceptional child, but who are directly involved in our child’s education and development. While…
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How Societal Norms Prevent Parent’s From Connecting With Each Other
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So I’m A Terrible Parent–What’s Your Excuse? This morning in my inbox, I was greeted with an email from an acquaintance who alluded to the fact, that perhaps through social media, my kidlet might need some positive influences which should come in the form of another teenager. Oh yes, good idea, that should work! Totally…
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Why Parent Support Groups Are Needed Even at The College Level
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Once our kidlets go off on their own, we sometimes feel lonely and in need of his or her presence. But many parents may feel less valued. All those IEP files we’ve accumulated must be worth something by now; but they are not. They become worthless dust collectors on a random shelf. No need to…